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Why we should not seek individual informed consent for participation in health services research

journal contribution
posted on 2023-06-07, 13:58 authored by Jackie Cassell, A Young
Ethics committees now require that individuals give informed consent to much health services research, in the same way as for clinical research. This is misguided. Existing ethical guidelines do not help us decide how to seek consent in these cases, and have allowed managerial experimentation to remain largely unchecked. Inappropriate requirements for individual consent can institutionalise health inequalities and reduce access to services for vulnerable groups. This undermines the fundamental purpose of the National Health Service (NHS), and ignores our rights and duties as its members, explored here. Alternative forms of community consent should be actively pursued.

History

Publication status

  • Published

Journal

Journal of Medical Ethics

ISSN

0306-6800

Publisher

BMJ Publishing Group

Issue

5

Volume

28

Page range

313-317

Department affiliated with

  • Primary Care and Public Health Publications

Full text available

  • No

Legacy Posted Date

2007-03-30

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