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Tailoring information provision and consent processes to research contexts: the value of rapid assessments

journal contribution
posted on 2023-06-08, 12:45 authored by S Bull, Bobbie FarsidesBobbie Farsides, F Tekola Ayele
Guidance requires that consent processes for research be appropriately tailored to their cultural context. This paper discusses the use of rapid assessments to identify cultural and ethical issues arising when explaining research in studies in The Gambia and Ethiopia. The assessments provided insights into appropriate ways of providing information to minimize the risk of stigmatizing vulnerable research populations; research participants' views about the most important information to provide about research and their understandings of research; and perceived constraints upon reaching voluntary decisions about participation. These insights demonstrate that rapid assessments are a relatively quick and inexpensive intervention that can provide valuable information to assist in the tailoring of information provision and consent processes to research context while maintaining and enhancing participants' fundamental protections.

History

Publication status

  • Published

Journal

Journal of Empirical Research on Human Research Ethics

ISSN

1556-2646

Publisher

University of California Press

Issue

1

Volume

7

Page range

37-52

Department affiliated with

  • Clinical and Experimental Medicine Publications

Full text available

  • No

Peer reviewed?

  • Yes

Legacy Posted Date

2012-11-08

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