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Tailoring information provision and consent processes to research contexts: the value of rapid assessments
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posted on 2023-06-08, 12:45 authored by S Bull, Bobbie FarsidesBobbie Farsides, F Tekola AyeleGuidance requires that consent processes for research be appropriately tailored to their cultural context. This paper discusses the use of rapid assessments to identify cultural and ethical issues arising when explaining research in studies in The Gambia and Ethiopia. The assessments provided insights into appropriate ways of providing information to minimize the risk of stigmatizing vulnerable research populations; research participants' views about the most important information to provide about research and their understandings of research; and perceived constraints upon reaching voluntary decisions about participation. These insights demonstrate that rapid assessments are a relatively quick and inexpensive intervention that can provide valuable information to assist in the tailoring of information provision and consent processes to research context while maintaining and enhancing participants' fundamental protections.
History
Publication status
- Published
Journal
Journal of Empirical Research on Human Research EthicsISSN
1556-2646Publisher
University of California PressPublisher URL
External DOI
Issue
1Volume
7Page range
37-52Department affiliated with
- Clinical and Experimental Medicine Publications
Full text available
- No
Peer reviewed?
- Yes
Legacy Posted Date
2012-11-08Usage metrics
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