Differing views of children and parents: some cautionary tales!

Smith, Helen (2011) Differing views of children and parents: some cautionary tales! Clinical and Experimental Allergy, 41 (10). pp. 1344-1345. ISSN 0954-7894

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Both in medical research and clinical practice, traditional outcome measures, such as reduction of symptoms or days off work, are increasingly being augmented by quality-of-life (QOL) assessment. Within health care, QOL is determined not only by the patient's health status problems but also by their response and interpretation of the restrictions, and various instruments have been developed to measure this, both cross-sectionally and over time. Over the last 15 years, there has been increasing interest in QOL in children. As in adults, researchers have identified three distinct QOL perspectives; generic, health-related quality of life (HRQOL) and disease-specific quality of life (DSQOL). Generic measures of QOL can be used with both ill and healthy children. HRQOL focuses on health status and the individual's response to problems in health status. As such, the concept of HRQOL refers to the part of QOL that is primarily influenced by health status. DSQOL measurements assess changes in functioning and patients' sense of well-being in relation to a particular illness.

Because QOL is concerned with an individual's perceptions, self-reported questionnaires are the primary method of assessment. Early work assumed that children are unreliable respondents and lack the reading, linguistic and cognitive skills necessary to respond to QOL measurements [1]. Further justification for the use of parents as proxy reporters was claimed as it was recognized that parents act as the primary health-care provider and as the gatekeepers to paediatric health care.

Item Type: Article
Schools and Departments: Brighton and Sussex Medical School > Primary Care and Public Health
Subjects: R Medicine
Depositing User: Jessica Stockdale
Date Deposited: 09 Aug 2012 08:27
Last Modified: 09 Aug 2012 08:27
URI: http://srodev.sussex.ac.uk/id/eprint/40342
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