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Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding

journal contribution
posted on 2023-06-08, 12:48 authored by Julia Johnson, Nigel LeighNigel Leigh, Christopher E Shaw, Cathy Ellis, Rachel Burman, Ammar Al-Chalabi
Our objective was to examine the pleasure derived from eating in patients with advanced ALS and how this affects advice to have a gastrostomy. Patients with advanced ALS completed a visual analogue scale indicating the pleasure they derived from eating. Data were also collected on the severity of swallow using the Hillel scale, the independent feeding status, and on whether gastrostomy was accepted or not. The findings from 38 consecutive patients indicate that pleasure derived from eating is a powerful indicator of a person's acceptance of gastrostomy. In conclusion, the study showed that a simple analogue scale is quick and practical in a clinical setting even in severely compromised people with ALS and that the eating pleasure score was a strong predictor of the final decision to accept gastrostomy placement (p =?12.2 =?10(-4)).

History

Publication status

  • Published

Journal

Amyotrophic Lateral Sclerosis

ISSN

1471-180X

Publisher

Informa Healthcare

Issue

6

Volume

13

Page range

555-559

Department affiliated with

  • Clinical and Experimental Medicine Publications

Full text available

  • No

Peer reviewed?

  • Yes

Legacy Posted Date

2012-11-09

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    University of Sussex (Publications)

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