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Dying well with dementia: qualitative examination of end-of-life care

journal contribution
posted on 2023-06-08, 14:01 authored by Vanessa Lawrence, Kritika Samsi, Joanna Murray, Danielle Harari, Sube Banerjee
BACKGROUND People with dementia often die badly, receiving end-of-life care of poorer quality than that given to those who are cognitively intact. AIMS To define good end-of-life care for people with dementia and identify how it can be delivered across care settings in the UK. METHOD In-depth interviews were conducted with 27 bereaved family carers and 23 care professionals recruited from the community, care homes, general hospitals and continuing care units. Data were analysed using the constant comparison method. RESULTS The data highlighted the challenge and imperative of 'dementia-proofing' end-of-life care for people with dementia. This requires using dementia expertise to meet physical care needs, going beyond task-focused care and prioritising planning and communication with families. CONCLUSIONS The quality of end-of-life care exists on a continuum across care settings. Together, the data reveal key elements of good end-of-life care and that staff education, supervision and specialist input can enable its provision.

History

Publication status

  • Published

Journal

The British journal of psychiatry : the journal of mental science

ISSN

1472-1465

Publisher

Royal College of Psychiatrists

Issue

5

Volume

201

Page range

417-22

Department affiliated with

  • Clinical and Experimental Medicine Publications

Full text available

  • No

Peer reviewed?

  • Yes

Legacy Posted Date

2012-11-30

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