Life on a slippery slope: perceptions of health in adults with cystic fibrosis

Lowton, Karen and Gabe, Jonathan (2003) Life on a slippery slope: perceptions of health in adults with cystic fibrosis. Sociology of Health and Illness, 25 (4). pp. 289-319. ISSN 0141-9889

PDF - Accepted Version
Download (429kB) | Preview


This paper focuses on how adults with cystic fibrosis (CF) attending a specialist CF centre in the UK perceive their health. In common with many other genetic diseases, CF is traditionally conceptualised as a fatal childhood disease, yet the average survival age for those with CF has been steadily rising over the past half century. Thus it is now predicted that those born in 1990 will live on average for 40 years. To date, however, most sociological work has focused on children or adolescents affected by CF rather than on adults between the ages of 18 and 40, the focus of the study reported here. The paper shows that these adults' varying perceptions of health are related to the effects of CF, its treatment, and the context in which adults are placed. Four concepts of health are identified (health as 'normal', controllable, distressing and a release) along with certain styles, ways of coping and related strategies. Through these analytic distinctions the paper aims to make a contribution to the sociological understanding of lay concepts of health in adults with childhood or genetic disease.

Item Type: Article
Schools and Departments: School of Law, Politics and Sociology > Sociology
Subjects: H Social Sciences
Depositing User: Karen Lowton
Date Deposited: 20 May 2015 09:31
Last Modified: 08 Mar 2017 04:27

View download statistics for this item

📧 Request an update