Cooper, V, Clatworthy, J, Youssef, E, Perry, N, Nixon, E, Fisher, M, Pollard, A, Llewellyn, C, Miners, A, Lagarde, M, Sachikonye, M, Sabin, C and Foreman, C (2015) [Abstract] What aspects of health care are most valued by people living with HIV? Results of a systematic review. In: Unset.

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Abstract

Background: Increasing numbers of people with HIV are living into older age and experiencing comorbidities. The development of new models of care to meet the needs of this population is now a priority. It is important that the views and preferences of patients inform the development of services in order to optimise patient satisfaction and engagement. The aim of this systematic review was to determine which aspects of healthcare are particularly valued by people living with HIV.
Methods: We searched electronic databases and hand-searched the reference lists of relevant articles. The search strategy was developed to identify articles reporting on HIV positive patients’ perceptions, evaluations or experiences of healthcare services and factors associated with satisfaction with care. Peer reviewed papers and conference abstracts were included if the study reported on aspects of health care that were valued by people living with HIV, data were collected during the era of combination therapy (from 1996 onwards), and the paper was published in English. A thematic approach to data synthesis was used.
Results: Twenty-one studies met the inclusion criteria. Studies used both qualitative (n=12) and quantitative methods (n=11). The valued aspects of care identified were grouped into seven themes. These highlighted the importance to patients of: a good doctor patient relationship, HIV specialist knowledge, continuity of care, ease of access to appointments, access to high quality information and support, effective co-ordination between HIV specialists and other healthcare professionals, and involvement in decisions about their treatment. We were unable to determine the relative importance to patients of different aspects of care because of methodological differences between the studies.
Conclusions: This review identified several attributes of healthcare that are valued by people living with HIV, some of which would be relevant to any future reconfiguration of services to meet the needs of an ageing population. The results have been used to inform the design of a Discrete Choice Experiment which is currently being conducted across South East England to determine the relative importance to patients of different aspects of care.

Item Type:	Conference or Workshop Item (Paper)
Schools and Departments:	Brighton and Sussex Medical School > Primary Care and Public Health Brighton and Sussex Medical School > Division of Medical Education
Subjects:	R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine > RA0440 Study and teaching. Research
Depositing User:	Phoenix Marshall
Date Deposited:	19 Sep 2016 15:57
Last Modified:	25 Sep 2017 10:23
URI:	http://srodev.sussex.ac.uk/id/eprint/63419

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