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Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis

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posted on 2023-06-09, 03:57 authored by Desta Ayode, Abebayehu Tora, David Farrell, Getnet Tadele, Gail DaveyGail Davey, Colleen M McBride
Background: Disease-related stigma is a public health concern steadily gaining global attention. Evidence consistently shows that an individual’s attribution of disease cause can prompt or justify interpersonal stigma. However, few studies have explored causal beliefs about inherited disease and their influence on stigmatising behaviours in low and middle income countries. Design and methods: The study was conducted in 2013, in six communities in Wolaita zone, Southern Ethiopia. A total of 1800 respondents took part in the study, 600 were affected by an inherited disease and 1200 were unaffected neighbours. Two versions of the interviewer- administered survey were created, with measures assessed in parallel on experienced stigma for the affected and enacted stigma for unaffected respondents. Results: Mean levels of enacted stigma reported by unaffected respondents were slightly lower (2.0, SD=0.7) than experienced stigma reported by affected respondents [2.2 (standard deviation=1.1)]. Beliefs that podoconiosis was hereditary were significantly and positively associated with levels of enacted stigma reported by unaffected respondents and experienced stigma reported by affected respondents (PConclusions: If stigma reduction interventions are to be successful, culturally tailored, gender inclusive and innovative health education programs are required, directed at the general community as well as individuals affected by inherited diseases

History

Publication status

  • Published

File Version

  • Published version

Journal

Journal of Public Health Research

ISSN

2279-9028

Publisher

PAGEpress

Issue

2

Volume

5

Page range

75-80

Department affiliated with

  • Global Health and Infection Publications

Research groups affiliated with

  • Centre for Global Health Policy Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2016-11-08

First Open Access (FOA) Date

2016-11-08

First Compliant Deposit (FCD) Date

2016-11-08

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