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Factors associated with the quality of life of family carers of people with dementia: a systematic review

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posted on 2023-06-21, 06:02 authored by Nicolas Farina, Thomas E Page, Stephanie DaleyStephanie Daley, Anna Brown, Ann Bowling, Thurstine Basset, Gill Livingston, Martin Knapp, Joanna Murray, Sube Banerjee
Introduction: Family carers of people with dementia are their most important support in practical, personal and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. Methods: Searches on terms including ‘carers’, ‘dementia’, ‘family’ and ‘quality of life’ in research databases. Findings were synthesised inductively, grouping factors associated with carer QOL into themes. Results: 909 abstracts were identified. Following screening, lateral searches and quality appraisal, 41 studies (n=5,539) were included for synthesis. Ten themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional wellbeing; support received; carer independence; carer self-efficacy; and future. Discussion: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.

Funding

C-DEMQOL - Measurement of quality of life in family carers of people with dementia: development of a new instrument for clinical and economic evaluation; G1705; ALZHEIMERS SOCIETY; 234 (AS-PG-14-017)

History

Publication status

  • Published

File Version

  • Accepted version

Journal

Alzheimer's and Dementia

ISSN

1552-5260

Publisher

Elsevier

Issue

5

Volume

13

Page range

572-581

Department affiliated with

  • BSMS Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2017-01-05

First Open Access (FOA) Date

2017-02-24

First Compliant Deposit (FCD) Date

2017-01-05

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