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Genomics England’s implementation of its public engagement strategy: blurred boundaries between engagement for the UK’s 100,000 Genomes Project and the need for public support
Version 2 2023-06-12, 08:46
Version 1 2023-06-09, 09:01
journal contribution
posted on 2023-06-12, 08:46 authored by Gabrielle Natalie Samuel, Bobbie FarsidesBobbie FarsidesThe UK’s 100,000 Genomes Project has the aim of sequencing 100,000 genomes from National Health Service patients such that whole genome sequencing becomes routine clinical practice. It also has a research-focused goal to provide data for scientific discovery. Genomics England is the limited company established by the Department of Health to deliver the project. As an innovative scientific/clinical venture it is interesting to consider how Genomics England positions itself in relation to public engagement activities. We set out to explore how individuals working at, or associated with Genomics England, enacted public engagement in practice. Our findings show that individuals offered a narrative in which public engagement performed more than one function. On one side public engagement was seen as ‘good practice’. On the other, public engagement was presented as core to the project’s success – needed to encourage involvement and ultimately recruitment. We discuss the implications of this in this paper.
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Publication status
- Published
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- Published version
Journal
Public Understanding of Science JournalISSN
0963-6625Publisher
SAGEExternal DOI
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3Volume
27Page range
352-364Department affiliated with
- Clinical and Experimental Medicine Publications
Full text available
- Yes
Peer reviewed?
- Yes
Legacy Posted Date
2017-11-24First Open Access (FOA) Date
2017-11-24First Compliant Deposit (FCD) Date
2017-11-24Usage metrics
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