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Genomics England’s implementation of its public engagement strategy: blurred boundaries between engagement for the UK’s 100,000 Genomes Project and the need for public support

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Version 2 2023-06-12, 08:46
Version 1 2023-06-09, 09:01
journal contribution
posted on 2023-06-12, 08:46 authored by Gabrielle Natalie Samuel, Bobbie FarsidesBobbie Farsides
The UK’s 100,000 Genomes Project has the aim of sequencing 100,000 genomes from National Health Service patients such that whole genome sequencing becomes routine clinical practice. It also has a research-focused goal to provide data for scientific discovery. Genomics England is the limited company established by the Department of Health to deliver the project. As an innovative scientific/clinical venture it is interesting to consider how Genomics England positions itself in relation to public engagement activities. We set out to explore how individuals working at, or associated with Genomics England, enacted public engagement in practice. Our findings show that individuals offered a narrative in which public engagement performed more than one function. On one side public engagement was seen as ‘good practice’. On the other, public engagement was presented as core to the project’s success – needed to encourage involvement and ultimately recruitment. We discuss the implications of this in this paper.

History

Publication status

  • Published

File Version

  • Published version

Journal

Public Understanding of Science Journal

ISSN

0963-6625

Publisher

SAGE

Issue

3

Volume

27

Page range

352-364

Department affiliated with

  • Clinical and Experimental Medicine Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2017-11-24

First Open Access (FOA) Date

2017-11-24

First Compliant Deposit (FCD) Date

2017-11-24

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