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Jones_et_al-2018-Clinical_%26_Experimental_Allergy.pdf (846.9 kB)

Exploring what motivates and sustains support group engagement amongst young people with allergies: a qualitative study

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posted on 2023-06-20, 14:17 authored by C L Jones, L A Sommereux, H E Smith
Background Positive self-care behaviours are more likely in young people who engage with allergy support groups, but reasons for this association are not well understood. Objectives This study explored how and why young people engage with allergy support groups to identify what activities and resources are beneficial. Methods In-depth, semi-structured interviews were conducted with young people aged 12-21 years who reported engaging with allergy support groups (in person or on-line). Interviews were audiotaped, transcribed verbatim and analysed using thematic content analysis. Results The 21 participants had a range of allergies; initially most joined support groups on suggestion of their parent/carer although older participants sought groups independently. Feeling included and sharing experiences with people with similar problems/challenges were highly valued. Through membership, young people reported improved self-esteem and confidence in both managing their allergies and lives generally. Information, such as allergy alerts and hard-hitting video campaigns were reported to positively influence adherence to self-care behaviours such as carrying medication which led to sustained engagement. Participants wanted greater availability of allergy support groups, and higher profiles in healthcare and educational settings, as well as through social media. Conclusions and clinical relevance Participants valued the psychological and practical support of networking with others with allergies, and described how membership improved their confidence. This study also provides insight into the ways support groups improve young people’s adherence to medical advice and positive self-care behaviours; participants responded well to hard-hitting video campaigns which appeared to emphasise the severity and susceptibility of anaphylaxis. Participants identified the need for more active promotion of support groups amongst young people and their clinicians, as well as making them available in more localities.

Funding

Understanding why young people with severe allergies join support groups; G1524; ANAPHYLAXIS CAMPAIGN

History

Publication status

  • Published

File Version

  • Accepted version

Journal

Clinical & Experimental Allergy

ISSN

0954-7894

Publisher

Wiley

Issue

9

Volume

48

Page range

1195-1205

Department affiliated with

  • Clinical and Experimental Medicine Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2018-06-14

First Open Access (FOA) Date

2019-06-14

First Compliant Deposit (FCD) Date

2018-06-13

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