University of Sussex
Browse
1/1
2 files

A comprehensive model of factors associated with capability to “live well” for family caregivers of people living with mild-to-moderate dementia

Version 2 2023-06-12, 08:57
Version 1 2023-06-09, 16:25
journal contribution
posted on 2023-06-12, 08:57 authored by Linda Clare, Yu-Tzu Wu, Catherine Quinn, Ian R Jones, Christina R Victor, Sharon M Nelis, Anthony Martyr, Rachael Litherland, James A Pickett, John V Hindle, Roy W Jones, Martin Knapp, Michael D Kopelman, Robin G Morris, Jennifer Rusted, Jeanette M Thom, Ruth A Lamont, Catherine Henderson, Isla Rippon, Alexandra Hillman, Fiona E Matthews
Introduction: Understanding key influences on outcomes for caregivers of people with dementia is hampered by inconsistent conceptualization and measurement of outcomes and limited evidence about the relative impact of different variables. We aimed to address these issues. Methods: We analyzed data from 1283 caregivers of community-dwelling individuals with mild-to-moderate dementia in the Improving the experience of Dementia and Enhancing Active Life cohort study. We generated a “living well” latent factor from measures of quality of life, satisfaction with life, and well-being. We used structural equation modelling to derive latent variables for 7 domains reflecting caregivers’ perceptions of their personal resources and experiences, and to examine the associations with caregivers’ perceptions of their capability to “live well.” Results: The domain of psychological characteristics and psychological health was most strongly related to living well [2.53; 95% confidence interval (CI), 2.08-2.97], followed by physical fitness and physical health (1.48; 95% CI, 1.04-1.91) and experiencing caregiving (1.34; 95% CI, 0.99-1.70). Social capitals, assets and resources (0.68; 95% CI, 0.35-1.00) and relationship with the person with dementia (-0.22; 95% CI, -0.41 to -0.03) had smaller, significant associations. Social location (0.28; 95% CI, -0.33 to 0.89) and managing everyday life with dementia (0.06; 95% CI, -0.15 to 0.28) were not significantly associated with living well. Discussion: These findings demonstrate the importance of supporting caregivers’ psychological and physical health and their ability to develop and maintain positive coping strategies, as well as enabling them to maintain vital social capitals, assets and resources.

History

Publication status

  • Published

File Version

  • Published version

Journal

Alzheimer Disease & Associated Disorders

ISSN

0893-0341

Publisher

Lippincott, Williams & Wilkins

Issue

1

Volume

33

Page range

29-35

Department affiliated with

  • Psychology Publications

Research groups affiliated with

  • Dementia Research Group Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2019-01-08

First Open Access (FOA) Date

2019-01-08

First Compliant Deposit (FCD) Date

2019-01-03

Usage metrics

    University of Sussex (Publications)

    Categories

    No categories selected

    Licence

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC