Threats to embodied well-being: An exploration of how disabled people negotiate barriers in hospital settings

Bailey, Ruth, Lowton, Karen and Scambler, Sasha (2019) Threats to embodied well-being: An exploration of how disabled people negotiate barriers in hospital settings. Health. ISSN 1363-4593

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Abstract

Taking a social model of disability approach, this article explores how disabled people negotiate barriers in the large, modern hospital settings typically found in complex healthcare systems. While there is evidence of intractable barriers in the United Kingdom’s National Health Service, little is known about the actions disabled people take in the face of barriers and the immediate effects of doing so. Analysis of data from a qualitative study of disabled people’s healthcare encounters is presented. This draws on the concept of threats to embodied well-being to understand how disabled people perceive barriers and the influence this perception has on barrier negotiation. It demonstrates that some barriers are unique to healthcare and that these place disabled people in situations where their well-being is threatened. Despite these situations being inherently disempowering, disabled people are forced to take whatever action they can to protect the embodied self. We theorise that barriers are created inadvertently by the design, organisation and healthcare practices characteristics of modern hospital settings. Effective barrier removal requires understanding not only their impact on disabled people’s embodied well-being, but also the political, policy and social relations implicated in their creation.

Item Type: Article
Keywords: disabled people, disabling barriers, embodied well-being, healthcare services, qualitative, threats, UK
Schools and Departments: School of Law, Politics and Sociology > Sociology
Subjects: H Social Sciences > HM Sociology
Depositing User: Karen Lowton
Date Deposited: 09 Jan 2019 17:03
Last Modified: 09 Jan 2019 17:05
URI: http://srodev.sussex.ac.uk/id/eprint/81167

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